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PostPosted: Tue Feb 01, 2011 7:19 am 
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SEVAI runs a day care centre Muscular Dystrophy affected in Trichy.

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Muscular Dystrophy is a genetic disease which has no cure. This generally affects young children. In this disease gradual deterioration of muscles occurs and slowly the patient is unable to do any movements. Muscular Dystrophy is an inherited disease. It is characterized by progressive weakness of the muscles which control movement. There are a variety of dystrophies and the inheritance pattern varies with each type. Most of the dystrophies affect young children. The major forms of MD include myotonic, Duchenne, Becker, limb-girdle, facioscapulohumeral, congenital, oculopharyngeal, distal and Emery-Dreifuss.Duchenne Dystrophy is the most common dystrophy that occurs in children and has a sex-linked recessive inheritance. This means it affects boys, and females are carriers of the disease. All the voluntary muscles of the body are involved in the dystrophic process, some more and some less. For example the muscles involved in chewing food are least affected while respiratory muscles are involved late in the disease. Limb girdle muscles are most involved. As life advances these children loose various functions. First, walking is affected, later they find difficulty in rising from sitting posture. Soon they take to the wheel chair. Though their brain functions normally, the muscles slowly keep deteriorating, and pretty soon independent existence becomes impossible.

The life span of these children is cut short and they usually die around 16-20 years of age. In view of the above some like-minded doctors and social workers got together in 1973 and founded Muscular Dystrophy Society. A day care home for the persons affected with muscular dystrophy established by SEVAI, a voluntary organisation, at Allur, with the support of the Differently Abled Welfare Department were declared open by Transport Minister K.N.Nehru recently.

Speaking on the occasion, the Minister said nearly 3,000 differently abled persons were provided welfare assistance to the tune of Rs.5.85 crore in Tiruchi district in the last four and half years. Over 32,162 different abled persons were provided national identity cards and 6,366 such persons were given free bus passes in the last four and half years in Tiruchi district.Mr.Nehru who released a booklet containing the welfare schemes and also training for the physically challenged also handed over the keys of 100 houses built for differently abled at Amoor village in Musiri block in the district. District Collector Mahesan Kasirajan, Dr.Mohanasundaram, Joint Director of Medical Services, Augustin Peter Fathima, Additional Chief Educational Officer, Sarva Shiksha Abhiyan and other officials were present on the occasion. The aim of the society was to give cheer to the afflicted as there is no treatment available. The Society has concentrated on improving their life style, increase their ability to stand and walk for more number of years. The genetic defect of each type of dystrophy is now recognized and soon treatment related to this genetic knowledge may be introduced. In order to keep pace with the world, the Society is now trying hard to expand its activities and introduce genetic research in India. Funds are difficult to come by and the Society appeals to one and all to donate generously.

Many people don’t know much about muscular dystrophy. Yet a quarter of a million kids and adults are living with the disease, so chances are you may know someone who has it. Muscular dystrophy (MD) is a genetic disorder that weakens the muscles that help the body move. People with MD have incorrect or missing information in their genes, which prevents them from making the proteins they need for healthy muscles. Because MD is genetic, people are born with the problem — it’s not contagious and you can’t catch it from someone who has it.MD weakens muscles over time, so children, teens, and adults who have the disease can gradually lose the ability to do the things most people take for granted, like walking or sitting up. Someone with MD might start having muscle problems as a baby or their symptoms might start later. Some people even develop MD as adults. Several major forms of muscular dystrophy can affect teens, each of which weakens different muscle groups in various ways: Duchenne muscular dystrophy (DMD), the most common type of the disease, is caused by a problem with the gene that makes a protein called dystrophin. This protein helps muscle cells keep their shape and strength. Without it, muscles break down and a person gradually becomes weaker. DMD affects boys. Symptoms usually start between ages 2 and 6. By age 10 or 12, kids with DMD often need to use a wheelchair. The heart may also be affected, and people with DMD need to be followed closely by a lung and heart specialist. They can also develop scoliosis (curvature of the spine) and tightness in their joints. Over time, even the muscles that control breathing get weaker, and a person might need a ventilator to breathe. People with DMD usually do not survive beyond their late teens or early adulthood. Becker muscular dystrophy (BMD), like DMD, affects boys. The disease is very similar to DMD, but its symptoms may start later and can be less severe. With BMD, symptoms like muscle breakdown and weakness sometimes don’t begin until age 10 or even in adulthood. People with BMD can also have breathing, heart, bone, muscle, and joint problems. Many people with BMD can live long, active lives without using a wheelchair. How long a person with BMD can live varies depending on the severity of any breathing and heart problems. Emery-Dreifuss (pronounced: em-uh-ree dry-fuss) muscular dystrophy (EDMD) typically starts causing symptoms in late childhood to early teens and sometimes as late as age 25. EDMD is another form of muscular dystrophy that affects mostly boys. It involves muscles in the shoulders, upper arms, and shins, and it often causes joint problems (joints can become tighter in people with EDMD). The heart muscle may also be affected. Limb-girdle muscular dystrophy (LGMD) affects boys and girls equally, weakening muscles in the shoulders and upper arms and around the hips and thighs. LGMD can begin as early as childhood or as late as mid-adulthood and it often progresses slowly. Over time, a wheelchair might be necessary to get around. There are many different types of LGMD, each with its own specific features. Facioscapulohumeral (pronounced: fa-she-o-skap-you-lo-hyoo-meh-rul) muscular dystrophy (FSHD) can affect both guys and girls, and it usually begins during the teens or early adulthood. FSHD affects muscles in the face and shoulders and sometimes causes weakness in the lower legs. People with this type of MD might have trouble raising their arms, whistling, or tightly closing their eyes. How much a person with this form of muscular dystrophy is affected by the condition varies from person to person. It can be quite mild in some people. Myotonic (pronounced: my-uh-tah-nick) dystrophy (MMD) is a form of muscular dystrophy in which the muscles have difficulty relaxing. In teens, it can cause a number of problems, including muscle weakness and wasting (where the muscles shrink over time), cataracts, and heart problems. Congenital muscular dystrophy (CMD) is the term for all types of MD that show signs in babies and young children, although the MD isn’t always diagnosed right away. Like other forms of MD, CMD involves muscle weakness and poor muscle tone. Occurring in both girls and boys, it can have different symptoms. It varies in how severely it affects people and how quickly or slowly it worsens. In rare cases, CMD can cause learning or intellectual disabilities. The life expectancy (in other words, how long a person may live) for many of these forms of muscular dystrophy depends on the degree to which a person’s muscles are weakened as well as how much the heart and lungs are affected. Nectar “T” is of a great importance Natural Nutrition that helps to delay the progress of the disease, succeed better stability & strength and avoid or delay serious complications that are related with Muscular Dystrophy (i.e. Heart failure, Respiratory failure, e.t.c).The NECTAR “T” Daily Nutrition Programme was created in 1993 by John Bazakis after his daughter was diagnosed with Friedreichs Ataxia (a disease similar to Muscular Dystrophy) The NECTAR “T” Daily Nutrition Programme is a very rare natural daily nutrition, based to a combination of fresh pure beehive products that are capable to boost the immune system and heal the muscle wounds in an absolute natural way The. NECTAR “T” Daily Nutrition Programme is the same program the Queen Bees follow daily that makes them invulnerable from diseases and capable to be almost immortal (due to this nutrition they live 40 times more than other bees!!).Nectar “T” aims: to Slow down the speed at which the disease progresses in order, to Avoid or delay , dangerous for the life of patients complications that are related with Muscular Dystrophy and appear in the depth of time ( i.e Muscle damage , Heart failure , respiratory problems , Diabetes , e.t.c ), to Reduce CPK levels, to Avoid other diseases that can worsen the gravely situation of the patients, to Extend the time of life, to Succeed a better quality of life, to Give Muscular Dystrophy patients the extra time they need to stand firm and happily welcome the cure to Muscular Dystrophy in a few years’ time. As you probably already know, MD is a genetic illness. That means that various organs of the human body (i.e Muscles, Heart, Respiratory system, Vision. Hearing e.t.c) are attacked continuously due to genetic disorders. The Role of Nectar “T” is to boost the human system (the same way with Queen Bees) in order to protect the organs that are attacked. This continuously confront of the attacked organs from Nectar “T” has as a result , the delay of the progress of the disease and in some cases , succeeds , avoidance of dangerous and risky for the life of patients complications .Cases of Muscular Dystrophy treated with Nectar “T”, Treatment for Duchene Muscular dystrophy, Treatment for Becker muscular dystrophy, Treatment for Myotonic muscular dystrophy, Treatment for FSH Facioscapulohumeral muscular dystrophy, Treatment for Congenital muscular dystrophy, Treatment for Friedreich’s Ataxia , Treatment for LGMD – Beta arcoglycanopaty. The Nectar “T” is a natural pure fresh substance without any adverse reactions .Nectar “T” facilitates all treatments for better results, Nectar “T” can be taken additionally with any other treatments since it facilitates them to attribute better results. Patients M.D Neurologists observations during the Nectar “T” nutrition, The opinion and observations of your Medical Neurologist during the Nectar “T” nutrition will be very helpful to us. Royal Cells Institute is in continuous communication with patients in order to observe their progress related with the Nectar T daily doses and help them. Speakers at a seminar on muscular dystrophy have presented to the State government a slew of proposals to improve treatment and care of persons with the debilitating condition. Muscular dystrophy is a hereditary disease which affects the muscles and nerves, resulting in the person remaining dependent on a wheelchair for life. The rehabilitation medicine experts called for establishment of clinics for muscular dystrophy in every medical college and district headquarter hospitals, in certain areas in the State there were more persons with muscular dystrophy but they remained undiagnosed and hence received no treatment. Experts’ requests government to conduct statewide statistical disease surveillance. “As a pilot study, a northern district and a southern district should be taken up,” “It is needed a separate ward for muscular dystrophy patients. There is need for a diagnostic centre that would include a genetic laboratory to conduct muscle testing and enzyme studies in the State. The laboratory could be established in either the Government General Hospital or the Institute of Child Health,” experts said. Testing for the genetic condition would enable doctors to identify the mutation in genes and classify the disease accordingly, said K.Govindaraju, Director, SEVAI. He said technical expertise could be sought to fabricate mobility aid to suit the needs of the patients. The speakers also recommended that medical and surgical treatment of the patients should be brought under the health insurance scheme of the State government. The government benefits to such persons should be increased on a par with what is given to persons with multiple disabilities, they added.


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PostPosted: Sun Jan 09, 2011 7:21 pm 
Like CBE trichy can also start some initiative like this.....

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PostPosted: Fri Oct 29, 2010 12:20 pm 


http://www.agaram.in


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PostPosted: Mon Oct 18, 2010 10:15 am 
safesocialwork@gmail.com wrote:
johnsonsahayaraj wrote:
Email Addresses:
Mrs.Kanimozhi: kanimozhi@sansad.nic.in
Mr.Kumar : trichy.mp@gmail.com
Mr.Siva : tiruchi.siva@sansad.nic.in


dear sir/madam
how r u?
*Greetings from SAFE*

We have formed a society for transgender and MSM people in
*trichirapalli *district,

named* "SOCIAL ACTION FOR EMANCIPATE"(SAFE)*

The VISION of the society is to enhance their basic needs and health.
The MISSION is to change their status at the CONSTITUTIONAL level.
we request you to join us with U,and communicate all the meetings ,
trainings , programmes,and other relevant information.*
i have 6 years experience in this field *
we solicit your fullest cooperation.

Thanking u
with regards
P.Kajol- aravani


*Office address*
*P.KAJOL
MANAGING DIRECTOR
"SOCIAL ACTION FOR EMANCIPATE" (SAFE)
3/2A RAIL NAGAR, TANJAI MAIN ROAD,TRICHIRAPALLI-620010,TAMILNADU
CONTACT NUM 09791548132, 04312440072
EMAIL safesocialwork@gmail.com
*


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PostPosted: Thu Sep 02, 2010 7:08 am 
Rotary's ‘Jumble sale' buoys buyers

TIRUCHI: The ‘Jumble Sale' of sparingly used clothes costumes and plastic items at throw away prices made recently by members of Rotary Club of Tiruchi Sakthi at the Subbiah School, Tennur, evoked an overwhelming response.

Attractive sarees, varieties of shirts, salwars and other clothes were sold for just Rs.2 to Rs.50 to buyers belonging to economically backward sections . With the proceeds, the Club intends to implement the ‘Ponmagal' project for the Rotary year 2010-11 and conduct Spoken English classes in rural schools. Anything given free has no value and charm. Hence the sale at very nominal costs, said B.Lakshmi Gopal, Club president.

The Club had reached out to the intended section of buyers with the information about the sale by putting up banners and distributing brochures in Tamil. The communication was also spread through maid servants and watchmen employed by the Club members.

The sale was executed as an innovative idea of the first all women Rotary Club in Tiruchi that was chartered in 2008 through the initiative and ingenuity of a group of women professionals including doctors, lawyers, academicians, chartered accountants, entrepreneurs, politicians and home makers. They were guided by the Rotary Club of Tiruchi. Sakthi, according to the Club members, has broken barriers by adding a feminine touch to the otherwise masculine world of Rotary. Buoyed by the public response, the Club has contemplated conducting similar sales on a periodic basis. The buyers who had bought the materials in bulk had requested the Club functionaries to conduct a similar sale before Diwali.

Subsequent sales would be carried out on a larger scale, the Club secretary Savitri Sivakumar said. Now that we are convinced that people readily buy sparingly used products, the Club members would prevail over members of other clubs to pool in clothes and materials for future sales, Ms. Savitri said.


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PostPosted: Tue Aug 31, 2010 11:15 pm 
Scheme of National Scholarships for Persons with Disabilities :

Financial assistance will be given for pursuing post-Matric/Post-Secondary technical and professional courses including Ph.D & M.Phil from recognized institutions.

http://socialjustice.nic.in/nsawardadv0809.php


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PostPosted: Thu Aug 12, 2010 7:54 pm 
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Hi Ananth Prasath thats really great.


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PostPosted: Thu Aug 12, 2010 4:04 pm 
DRCET

A BIREF HISTORY

In the heart of Trichy, a choultry called ‘Pappammal Anna Chathiram’ is serving many poor students with free stay & food to enable them to pursue their education and dreams. DRCET founders, Mr. R. Natarajan (Professor, National College, Trichy) and Mr. P. Ananth Prasath (IT Professional, Bangalore) were also beneficiaries of this organization and they completed their higher education staying there. When they had settled down with a job, they wanted to contribute back to the community and aid poor students to pursue their education in better ways. DRCET is formed as a result of their intention and the union of similar hearts!
DRCET was formally started on 26th September 2007 and is registered under Indian Government (Reg. No. 2738/2007).

Who WE Are
We are a team of professionals from different fields who came together to make a difference in the world of underprivileged students! Our motive is to facilitate poor students from rural areas to make most out of their education and thereby enabling them to prosper in their lives.

What WE Do
In the past one year, DRCET has grown tremendously as an organization and also explored, experimented and enabled many services to the underprivileged students as a measure to make positive changes in their lives, for now and for the future!
We request you to go through the http://www.drcet.org to get a glimpse of all the DRCET activities in the past 1 year and see how DRCET can fit into your life as well 
• Helping poor students to continue their education using DRCET Fund.
• Providing free library facility by collecting used books from DRCET members and supporters to enrich the library.
• Arranging free English communication skills improvement program.
• Awareness programs for the school students on importance of education, soft skills and how to face exams.
• Arranging free hostel facility for the needy.
• Helping poor students both financially and academically by providing them free coaching and books.
• Orphan students can claim for college or school fees with proper evidence and document.
• Scholarship is provided to the students who lost their mother or father.

What WE Done
• DRCET free library is operating successfully with more than 500 books for college students.
• 25 school students got benefited from DRCET Free English Communication Skills Program.
• DRCET is supporting education of 40 students who have lost one of their parents.
• There are 30 college students using DRCET library as their primary source of study materials.
• More than 5000 school students got benefited through the awareness program on “How to face exams”, Vetri Nichchayam” and “The Exam is Sweet/NOT Bitter”.
• DRCET has prepared and distributed a question bank with one word answer type questions for more than 2500 school students who are appearing for their 10th standard public exam.
• Providing program on ‘How to win competitive exams like bank exams’.

What you can DO…
• If you like to give a year of education to a particular needy students as the basis of 500 Rupees for SSLC, 1000 Rupees for HSC and 1500 Rupees for College students. Please contact us to assist you.
• Be a trainer to the school students to help their examination.
• Donate used books to DRCET Library.
• Become a DRCET member, actively involve in the projects and make a difference in student’s life.
• Volunteer to conduct awareness classes in your field of expertise.
• Be a financial supporter.
• Inform about DRCET to your friends, family and colleagues.
• Provide your valuable suggestions and feedback to consistently improve our services.

Key Points of DRCET

Vision:
March towards cent percent literacy of Indian.

Mission:
Education and motivation should be given to all the villagers irrespective of their caste, religion and creed.

Founders:
Mr. R. Natarajan
Mr. P. Ananth Prasath

Venue:
5A, Pandian Pillai Lane,
North Andal Street, Trichy -2, Tamilnadu.
Mobile: +91- 98657-67768(Tamilnadu).
+91-98809-60332(Karnataka).

We are back with lot of good news too :)

Please checkout those moments capture in here:

http://picasaweb.google.com/drcetindia08

In the past one year, DRCET has grown tremendously as an organization and also explored, experimented and enabled many services to the underprivileged students as a measure to make positive changes in their lives, for now and for the future!

In today's fast paced life, we all are fighting with the time & economy to achieve our goals, to fulfill commitments, to be with the loved ones and to pursue our interests. Though, as a human being, we feel bad for the poor, and even if we want to help them, when put under the pressure of the above priorities, we are left without much luxury of the time or money.

However, we do believe and also demonstrated that 'Little Drops Make an Ocean.' Most of the DRCET members are coming from a busy lifestyle as well. However, each one chose to contribute to whatever is possible & feasible within their budget, both in terms of time & money. There is a plenty of modes you can contribute and make the difference in the world of this underprivileged students. You can donate books (new/used), sponsor notebooks, stationeries, teach a class, conduct seminars & workshops, contribute to DRCET fund & scholarship or even choose a student to sponsor.

We request you to go through the attached presentation to get a glimpse of all the DRCET activities in the past 1 year and see how DRCET can fit into your life as well :)

Come, let's make a difference together!


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PostPosted: Tue Aug 10, 2010 8:47 pm 
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PostPosted: Thu Jul 22, 2010 7:20 am 
‘Goonj' to be launched in city

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To the needy : Anshu K. Gupta, founder of Goonji NGO, New Delhi addressing Bussiness Management students of Bishop Heber College

TIRUCHI: “It is strange that clothing, a fundamental need never finds a place among issues ranging from domestic violence to global warming that occupy global attention today,” observed Anshu Gupta, founder –director of Goonj, a Delhi-based NGO, at the inaugural of the Business Management Association of Bishop Heber College, Tiruchi.

Goonj would soon launch its presence in Tiruchi from Bishop Heber College, the second initiative in Tamil Nadu after Chennai.

The Heber Institute of Management would function as a collection point, transporting collected materials to the Chennai office.

Goonj has evolved into a nationwide movement in a decade and works on channelising excesses from urban households to meet needs of the rural poor, primarily cloth. To ensure the dignity of recipients, cloth is not given as charity but as reward for labour, thus repositioning the concept of charity.

Students of the Heber Institute of Management, Tiruchi were an inspired lot at the end of Tuesday's interactive session with Mr. Gupta, who said “When we give generously to the unknown power, then why not to a known person who is hungry?” said Mr.Gupta.

He cautioned students interested in social work to take it up seriously and not treat it as a hobby. He encouraged them to replicate the concept of Goonj, stressing that he wished for Goonj's growth as an idea rather than an organisation.

According to Mr. Gupta, clothing is generally viewed as a disaster-relief material or as wastage rather than a resource.

Mr. Gupta's narration of true but disturbing accounts of poverty in remote places of India, left the students stunned in silence. The rapt audience gave him a standing ovation., applauding the efforts of Goonj across the country.

“We have enough of thinkers today; what we need is people who take action,” he concluded urging the students to take initiative for social good. The office bearers of the Association were inducted into their posts after an oath-taking ceremony.

P. Manohar, bursar, delivered the presidential address and Michael David Premkumar, head of the departmentof busines management spoke.


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